I’m not sure if she was in a lot of pain this day or what, but she was very very sad this day. The kids were all still gone (thank you Momma!) and so we were able to focus on her a lot. Here’s what I texted to my mom: “Ruby is sad sad sad today. And puked last night again. Poor girl. Hardly slept at all and I basically nursed her the entire night. So they sent her home on the blood pressure medicine that actually isn’t for blood pressure, but lowering the BP is a side affect of the medicine. I sure hope she doesn’t have to take it the rest of her life. Some kids in that heart group have to take it forever. And that’d be just crumby. Doable but no one wants to take medicine forever. Hug those kids for me!”
She’d had a really sad night and absolutely would not let me put her down. She had thrown up her pain meds the night before and was sad all morning. Poor girl. We finally were able to get both pain meds down her to help her with her pain. It was a hard day. At about 7:30 pm, I noticed that she was super duper sweaty—more sweaty than before surgery, which was often before, but she completely drenched my shirt sleeve. But I’d touch her forehead and would be surprised at how cold and clammy her head felt, as well as her feet and hands being really cold. She seemed dehydrated to me because the soft spot on her head was more pronounced. We expected that she would be sad today, and so I guess it wasn’t weird, but it was hard.
Here’s Dillon serenading her on his guitar. It helped a little. Maybe she just missed the hospital staff and all their attention ;). They really all did tell us countless time how smiley and friendly and cute she was.
I suppose I was struggling a little that day as well. She was really sad, and I was bummed. Because I really didn’t want her to have to take medicine for the rest of her life. I had never even considered the possibility that something else might go wrong and not work properly. I knew the valve was good and that lessened the chances of her having another surgery greatly, but I wasn’t prepared for anything else being wrong after surgery.
There’s a smile! Don’t you just LOVE the blanket? Someone anonymously left it on our porch and it just said, “Love the Lighthouse Ward.” So sweet.
Originally posted on family blog in 2013.